Determining the burdens and difficulties faced by families with intellectually disabled children
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Objectives: This descriptive research was conducted with the aim of determining the difficulties families with intellectually disabled children face and their family burdens. Methods: The research population consisted of the mothers of 220 children who are aged 0-18 and monitored at a Special Guidance and Research Center due to their intellectual disabilities. The sample group was composed of 160 mothers who consented to participate in the research. Results: Of the children, 36.9% had mild, 43.1% had moderate, and 20% had severe mental retardation. Of the mothers, 48.8% reported they had no one with whom to share the care of the child. Mothers also reported that they felt disappointment (38.8%), bewilderment (48.1%), shock (31.3%), desperation (52.5%), anger (16.9%), guilt (14.4%). Of the mothers, 13.1% blamed others, 61.9% accepted the situation as an act of God, 12.5% had thoughts of committing suicide, and 28.1% suffered from depression. On the "Family Burden Assessment Scale (FBAS)," 7.5% of the mothers got low scores, and 92.5% got high scores. Conclusion: This research found that most of the families felt anxious about the future, felt like their burden was too much to bear, and expected information and support from healthcare professionals.
SourceJournal of Psychiatric Nursing
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